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SHOP AYAHUASCA RETREATS BLOG

When a Chronic Diagnosis Becomes a Doorway: Lessons From Living With Crohn's

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Stella Vance
July 24, 2026


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The doctor called on a Tuesday afternoon with the biopsy results, and I laughed. Actually laughed. He'd just told me I had a disease I would carry for the rest of my life, and my body responded with something close to relief. The word was Crohn's. I had no clue what it meant. But after months of unexplained pain, hearing a name — any name — felt like someone had finally flipped on the light in a room I'd been stumbling around in for the better part of a year.

To understand why relief was the first emotion, you have to know what came before it. And what came before it was a whole lot of being told I was fine when I very clearly wasn't.

The Long Corridor of Being Dismissed

It started with a sharp pain low on the right side of my abdomen. Appendicitis runs in the family, so that was my working theory. The first doctor disagreed. He looked at me across the desk and asked, in that gentle voice physicians use when they've already decided, whether I was under a lot of pressure lately.

I was, honestly. A handful of things had gone sideways in my life at once and I felt like I was being hit from every direction. So I said yes. He nodded like that solved it and suggested I take some time off. Travel a bit. Relax. So I did — three months of travel, actually — and the pain came right along with me, packed neatly in my carry-on.

Second doctor: same verdict. Stress. Exercise more. Rest more. Work less. I did all of it. I still woke up at three in the morning with a stabbing pain that yanked me straight out of sleep. Third doctor, on a friend's recommendation, and I walked in with real hope. He said the same thing. Stress.

Here's something I learned during those months: “it's stress” is often what you hear when nobody can figure out what's actually wrong. Everyone has stress. The explanation fits well enough to close the file. It isn't malicious — it's just the easiest place to land when the answer isn't obvious. But I was the one waking up in the dark, and I knew this wasn't in my head.

The Sentence That Changed Everything

The third time, I pushed back. Told him flatly that this wasn't stress, that something was really wrong. He paused, and to his credit, he didn't get defensive. He said, okay, let's do a CT scan and take a proper look. That one sentence was the hinge on which the next fifteen years of my life turned.

The scan flagged something in my lower intestine. A GI specialist, a colonoscopy, a biopsy, and then that Tuesday phone call. Chronic disease, he explained. My immune system had decided my own digestive tract was the enemy and was attacking it, causing inflammation and pain when food passed through certain sections. There would be no cure. There would be management.

Manageable, though, is still a word. The specialist was direct: take this seriously or you'll be looking at surgery down the road to remove damaged sections of intestine. He prescribed medication. He also told me, more importantly, that I'd need to change how I lived and what I ate.

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The Detective Work of Figuring Out What Wrecks You

Here's the strange part about Crohn's — it's different for almost everyone who has it, and a lot of it comes down to food. One person's trigger is another person's breakfast. Someone can drink whiskey without a problem but end up doubled over from a glass of orange juice.

In my case, the villains turned out to be alcohol, spicy food, orange juice, greasy fast food, and — the cruelest of them — coffee. I didn't discover this list overnight. It took roughly two years of paying close attention to my body, cutting things out, reintroducing them cautiously, and slowly assembling a map of what I could and couldn't handle. Losing coffee was harder than losing alcohol. I'm not proud of that, but it's true.

A rough sketch of what those two years taught me:

  • Keep a simple food journal — nothing fancy, just what you ate and how you felt six hours later.
  • Change one variable at a time. If you cut three foods at once and feel better, you don't actually know which one was the culprit.
  • Symptoms often show up on a delay. The thing that flares you today might be something from yesterday's lunch.
  • Stress and sleep amplify everything. They aren't the disease, but they set the volume.
  • What worked last year may not work this year. Bodies drift.

The Friend Who Called Me Lucky

Around that time, I told a close friend what was going on. I was expecting the usual sympathy face. Instead he looked at me and said, “Dude, you're so lucky.”

I nearly walked out of the room. How in any universe was I lucky to have a lifelong disease? He explained. The way he saw it, this thing was going to force me to eat well, pay attention to my body, and take my health seriously in a way most people never manage until it's too late. In his words, I'd probably end up healthier than most of our friends precisely because I had no choice in the matter.

It didn't land at the time. I was too busy mourning coffee. But fifteen years on, I understand exactly what he meant. I cut those trigger foods completely — not most of the time, all of the time. I've had a long stretch now without a flare-up. And the discipline the disease demanded of me didn't stay in the kitchen. It bled into how I sleep, how I move, how I handle the inputs that shape a day.

Is a Chronic Illness a Gift? Honestly, No — But…

I'm not going to sit here and tell you a chronic illness is secretly wonderful. That's the kind of line people throw around in inspirational posts, and it always makes me wince. My friend's “you're lucky” was optimism, not medicine. Nobody handed me extra years.

What I will say is this: the thing I was most afraid of ended up pushing me toward a healthier life than I would have built on my own initiative. Left to my own devices, I'd still be pouring my third cup of coffee at 2pm and telling myself I'd start eating better on Monday. The disease made Monday non-negotiable.

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Three Things Worth Carrying With You

A few lessons have stayed with me from all of this, and if you're in the middle of something similar, they might be worth something.

First: trust your body and keep advocating for yourself. If something feels off and you keep getting brushed aside, don't stop asking. I heard “it's stress” three times before someone finally ordered the test that found the truth. Had I accepted the first answer, or the second, I'd still be in pain — or worse. You know your body better than anyone with a stethoscope who's met you for eleven minutes. You're allowed to keep pushing.

Second: a hard diagnosis can be a strange kind of turning point. Not because the illness is good — it isn't — but because it forces the changes you've been putting off. It made me confront habits I would have happily coddled forever. Some people find that turning point through diagnosis. Others find it through the death of someone close, or through the collapse of a career, or through a plant-medicine ceremony that shakes them out of a decade of autopilot. The doorway looks different. The invitation is the same.

Third: silver linings are usually invisible while you're standing in the storm. My friend saw mine long before I could. It took me a decade and a half to catch up to him. That's normal. You don't have to see the meaning right away. You just have to keep walking.

When You Can't Change the Situation

Viktor Frankl wrote that when we can no longer change a situation, we're challenged to change ourselves. I've thought about that line a lot. Chronic illness is one version of that challenge. So is grief. So is addiction. So is the slow realization that the life you built no longer fits the person you've become.

Some people find their way through with therapy. Some through faith. Some through community. And a growing number of people are finding their way through carefully held plant-medicine work — ayahuasca, psilocybin, ibogaine — as part of a bigger picture that includes better food, better sleep, better boundaries, and the kind of honest self-inquiry most of us avoid until forced. If any of that resonates, curated healing and plant-medicine retreats from around the world can be browsed on our marketplace here.

You might not like the assignment life just handed you. Nobody does, in the moment. But there's a decent chance that a few years from now, if you actually take the assignment seriously, you'll look back and realize it was the thing that finally changed you for the better.




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Stella, an aspiring writer and psychedelics enthusiast, balances her studies with global adventures. Having penned stories since childhood, she is now a contributor to the ShopAyahuascaRetreats blog, sharing her experiences and insights to uplift collective consciousness and improve psychological well-being for all.